Today Oliver had his first full "normal" day.  We will have to redefine what we consider normal, but he was actually acting himself - playing and moving around, not wanting to stay in bed all day.  He really wants to get out of the hospital room and go for a ride around the floor in the red wagon.  However, we have to wait for some tests to come back to confirm he does not have any infection before we can take him out of the room.  They should be back tomorrow - we are hoping to be out of the...
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Platelets still low (17) received another transfusion today.  Was in good spirits all morning until afternoon and then started acting very strangely in afternoon– very restless as if nerves in his legs were twitching.  He said he wants to go home now.  Making progress on giving the oral medication, but it is still quite a struggle.  So hard to explain to a four year old what is going on – he does not understand the medicine is making him feel what he is feeling and he is scared.  Received...

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Oliver spiked a fever of 103.7 today – the doctors came in and ran a gamut of tests.  Fever broke shortly after receiving Tylenol.  This evening was acting strange, almost as if he had vertigo.  He received some blood pressure medication and the doctors took special precautions because he has very low ANC -160.  Also received blood and platelet transfusions – platelets at 16, blood 7.8 prior to transfusion.  He had lots more diarrhea and had to receive an EKG in the middle of the night be...

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Today we tried to take Oliver to a “pill” class, where they learn to take pills.  Oliver was really out of it from the chemo and fell asleep, so we are going to try again on Monday.  He received more chemo treatment and started having diarrhea.  He is still as sweet as ever and happy.  Blood pressure also still high. 

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Shortly after returning to the room from the OR, doctor confirmed Oliver has ALL.  This was “good” news as this type is the most treatable with the highest success rate (we have to find the good things and hold on them with all we have).  Oliver ate for the first time this morning since Tuesday afternoon.  He is in good spirits but has a strong aversion to oral medication.  We have been so impressed with the doctors and nurses at TCH – they are kind and patient and truly care about what...
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We met with Oliver’s doctors who explained generally what was happening and that they were certain Oliver had leukemia, but we needed to do a bone marrow aspiration to determine exactly which kind.  Before he could undergo these procedures, he had to have platelet transfusions.  In the early hours of the morning, Oliver had 2 platelet and 1 blood transfusion.  He was placed on three different types of antibiotics to fight/prevent infection.  They also indicated because of the number of b...

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