December 20, 2010
Wow! I can't believe how long it has been since I updated the blog. These past few weeks have been extremely busy. With Thanksgiving, Christmas prep, and out of town travel for work, haven't had much time, but that is no excuse, and I apologize to anyone that checked for an update only to find the stale November 8 post. Well, look at the bright side, more to catch up on this post. We just returned from clinic for a count check, Oliver's ANC was almost 7,000!!! We did not anticipate such a high number as two weeks ago his chemo was increased significantly and he wasnt feeling well the past couple of days. This is a great number and works well for our upcoming travel plans, unfortunately, I would be short sighted to be completely relieved. The doctors would prefer the ANC to be lower (around 1,000) to keep his immune system (and the cancer) suppressed, so I fully anticipate an increase in chemo at our next visit in two weeks.
We had our first ER scare about a month ago when we had to rush Oliver to the ER with an extremely high fever. Oliver recieved antibiotics immediately. Fortunately, it was just a bug going around and Oliver recovered quickly. I was out of town when Oliver went to the ER and details are not always easy to obtain. When I got home, Oliver gave me a complete play by play of the entire visit and even knew all of the medical terminology - platelet counts, port access, etc. I was amazed. His counts have remained consistent over the past few weeks. Oliver continues to excel in school, athletics and "brotherhood". He is so kind and generous with his sister. We are so proud of our little boy. It is hard to believe how fast life can change.
When Oliver was diagnosed, Larry and I both decided we weren't going to make a huge deal of it for Oliver's sake. He actually has no idea that he has cancer. When he lost his hair, he didnt seem to notice other than frustration from it getting in his way and in his mouth. Granted, not one part of this process has been easy and I would never choose it in a million years. But after reflecting on Oliver's leukemia, I must admit, it has brought us closer together as a family and truly appreciative of each other and each minute that we spend together. Oliver said it best when I asked him if he could wish for anything what would it be, to which he replied "I dont need a wish, I have my family". I wish that for all of you reading this, that you truly value life and have fun in every fleeting moment. Wishing you all a very Merry Christmas and many good things in this New Year!!
Posted by Ann Shortes.
November 8, 2010
ANC - 1070
Today Oliver received methotrexate via spinal tap and vincristine through his port. His ANC went down to 1070 which is close enough to his goal of 1000 and therefore no changes to his chemo dosages this week. He is now borderline neutropenic but this is in line with keeping his immune system supressed to ensure effective chemo. The spinals tend creep up on us each quarter much like any nagging appointment or commitment, best to just muster up the courage and deal with it. Oliver... Continue reading...
Posted by Ann Shortes.
October 26, 2010
Today Oliver's ANC shot up to 4016 despite the increase in chemo dosages two weeks ago. We will be increasing his at home chemo (methotrexate and 6mp) to bring the ANC down now within the 1,000 range. He has another spinal scheduled in two weeks (November 8). It is amazing how quickly time passes, it seems like we just had a spinal. Oliver also received his flu shot today. We were so impressed by how brave he was - no screaming or crying, he just sat calmly and watched as the nurse pushe... Continue reading...
Posted by Ann Shortes.
October 11, 2010
ANC: 1530 Platelets - 280 Hemoglobin - 11.7 Sorry for the delay in updates, Oliver's count check two weeks ago revealed an ANC of 2600. Oliver received vincristine through his port and an IVIG transfusion. His IGG counts crept up to within a normal range, so there is a possibility of no more IVIG transfusions! We will know in a month. Much like eager toddlers reaching for and focusing on one goal at a time in Oliver's treatment, we have yet to fully comprehend the underlying complexity of th... Continue reading...
Posted by Ann Shortes.
September 12, 2010
Clinic visit: September 14, 2010 ANC: 3,900 !!!! YAY! Oliver's ANC was actually normal at today's visit - it has not been this high in a very long time. Oliver received vincristine chemo in his port and also received an IVIG transfusion. While his ANC is up, his IG counts are still down. The doctor said it could take up to 6-7 weeks for the IG levels to stablize and some children need the transfusions throughout their entire treatment. We will also look at adjusting his chemo dosages. H... Continue reading...
Posted by Ann Shortes.
August 25, 2010
Last clinic visit: 8/20/2010 Counts: ANC below 1,000 but ok to resume chemo at home and start school One year ago today, Oliver was diagnosed with ALL. It is so hard to believe how drastically our lives have changed in that year. In the last year, Oliver has undergone surgeries, several very harsh treatments, been hospitalized at various times, lost and regrown his hair, swollen up like a balloon from steroids to extremely tiny and fragile and has fought very hard for his life. Larry and I... Continue reading...
Posted by Ann Shortes.
August 16, 2010
Today Oliver received methotrexate via spinal tap, vincristine chemo via his port and his first IV IG transfusion. He was premedicated with hydrocortisone (as is standard procedure as he had allergic reaction to his first transfusion of blood product). All went well, no reactions and he recovered quickly from the spinal. Unfortunately, Oliver's ANC counts dropped to 320 rendering him severly neutropenic and on isolation restriction, so no tae kwon do this week :) We also will again hold a... Continue reading...
Posted by Ann Shortes.
August 2, 2010
Today Oliver's ANC was 1060 slightly up from last week but not high enough to resume full strength chemo pills. He will stay on 50% methotrexate and mercapturine until his ANC gets above 1500. Results also came back from his enzyme study, no abnormalities to report but we did learn the cause of his low ANC counts was due to low IGG levels. He will need to start receiving monthly IV transfusions of IGG. These transfusions take 4-5 hours and are very similar to a blood or platelet transfus... Continue reading...
Posted by Ann Shortes.
July 19, 2010
Yesterday was Oliver's 5th birthday. We were so happy and thankful to celebrate another year of his life. He has been through so much this last year and is truly a remarkable boy. His latest obsession is with Mario games on the wii and of course he still enjoys his cars, play doh, etc. Today, he received vincristine via his port. We forgot to put numbing cream on his port today and he had to get it accessed with freeze spray, which is considerably more painful and Oliver was so strong, n... Continue reading...
Posted by Ann Shortes.
June 28, 2010
Oliver's WBC counts have been down the last couple of weeks leaving him on neutropenic isolation. They just went back up today and so he will resume his home chemo (pills) at reduced dosages with some modifications which hopefully will resolve the issue. The doctors also ordered an enzyme study last week. Results will be back in a couple of weeks to show if there are any issues with his body breaking down the methotrexate. We will keep everyone posted and are very happy his ANC went back ... Continue reading...
Posted by Ann Shortes.
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About Me
I started this blog as a way to keep everyone updated on Oliver's status and am so thankful for the outpouring from our friends, family and beyond. Thank you all for the support!
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